Muscular Dystrophy Association
Help Muscular Dystrophy Association (MDA) transform the lives of children and adults with muscular dystrophy, ALS and related neuromuscular diseases through innovations in science and innovations in care by airing their public service announcement (PSA) with your community. As the largest and longest-established organization for children and adults with neuromuscular disease, MDA works tirelessly on behalf of the muscular dystrophy community. They have done so for 70 years.
COVID-19 Won't Stop Us
COVID-19 Won't Stop Us
COVID-19 Won’t Stop Us highlights the life-saving care that Muscular Dystrophy Association is providing to one of the most vulnerable communities at this time, children and adults with neuromuscular diseases. This community is particularly at risk from COVID-19 due to their significant muscle deterioration that can lead to reduced function of respiratory and cardiac function. Additionally, those with neuromuscular diseases are facing increasing isolation from care givers and assistance they desperately rely on.
Muscular Dystrophy Association is on the frontline protecting communities across the United States during the COVID-19 pandemic. MDA is working with care centers to share new treatment guidelines, best practices for telemedicine and providing additional education and support to families.
- Campaign Overview Download
For 70 years, the Muscular Dystrophy Association (MDA) has been committed to transforming the lives of children and adults living with muscular dystrophy, ALS, and related neuromuscular diseases. We do this through innovations in science and innovations in care. As the largest source of funding for neuromuscular disease research outside of the federal government, MDA has committed more than $1 billion since our inception to accelerate the discovery of therapies and cures. Research we have supported is directly linked to life-changing therapies across multiple neuromuscular diseases. MDA’s MOVR is the first and only data hub that aggregates clinical, genetic, and patient-reported data for multiple neuromuscular diseases to improve health outcomes and accelerate drug development. MDA supports the largest network of multidisciplinary clinics providing best in class care at more than 150 of the nation’s top medical institutions. Our Resource Center serves the community with one-on-one specialized support, and we offer educational conferences, events, and materials for families and healthcare providers. Each year thousands of children and young adults learn vital life skills and gain independence at summer camp, at no cost to families, with virtual programming coming for summer 2020. During the COVID-19 pandemic, MDA continues to produce virtual events and programming to support our community when in-person events and activities are not possible. MDA’s COVID-19 guidelines and virtual events are posted at mda.org/COVID19.
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